A Message from Riley...
Hi, I am Riley. I will be five years old a few days after Christmas. I know what you are thinking, and NO, it does NOT affect how many presents I get for Christmas or my birthday!
According to mom, I was 'developing' right on schedule. I spoke several words,including "mama, bird, brother, and, puppy." Unfortunately, when I was a little over a year old, I got something called RSV (respiratory synctial virus - causing wheezing, inflammation in the lungs, and difficulty breathing). I guess it got so bad that I was almost hospitalized.
Shortly thereafter, things started changing in me. I started receiving therapeutic services around 21 months of age. A few months later, I was diagnosed with 'autism'. And, though it has taken my speech away and my ability to socialize, it is only something I have, not who I am.
One person I wish I could talk to most is my brother, Conner. I don't even think he realizes he is my best friend. He is always there for me. He 'gets' me...if I just want to sit next to him and do my own thing; he's fine with that. I love cuddling up to him and hugging him lots. He is so patient and nice to me. I hope he knows how much I love him.
And, as if DAN (Defeat Autism Now) doctors, homepaths, therapists, and aides weren't enough, mom and dad are arranging for me to have stem cell replacement therapy. Mom has talked to several parents who have taken their children for stem cell replacement and seen much success, as well as the doctors who perform this procedure.
It is here where I would like to ask for your support. The stem cell replacement costs a lot of money (I heard mom and dad talking one night). As there are a series of four trips we will have to take to Costa Rica/Panama in order to complete the procedures, there are a lot of fees involved. The place we are going (Stem Cell Medicine Institute) is about $15,500 EACH visit. In addition, each plane ticket is about $400 per person, and the week long stay at a hotel is about $750 each time. Mom and dad will also be purchasing a hyperbaric oxygen chamber (to assist in the stem cell replacement), which will be about $17,000. Soooo, this is about $90,000. I have NO idea how much this is, but I bet my family, friends, and other relatives could get into Disneyland for a few generations! If you are interested in donating, please visit my Wishing Well section at the top right and click on my page. It is a tax deductible donation.
Thank you for taking the time to read about me, my family, and the hope you are sending!
And, mom and dad - I can see your love, I can feel your love, and I share your love. Thank you for everything you do for me...I know, I really do know.
According to mom, I was 'developing' right on schedule. I spoke several words,including "mama, bird, brother, and, puppy." Unfortunately, when I was a little over a year old, I got something called RSV (respiratory synctial virus - causing wheezing, inflammation in the lungs, and difficulty breathing). I guess it got so bad that I was almost hospitalized.
Shortly thereafter, things started changing in me. I started receiving therapeutic services around 21 months of age. A few months later, I was diagnosed with 'autism'. And, though it has taken my speech away and my ability to socialize, it is only something I have, not who I am.
One person I wish I could talk to most is my brother, Conner. I don't even think he realizes he is my best friend. He is always there for me. He 'gets' me...if I just want to sit next to him and do my own thing; he's fine with that. I love cuddling up to him and hugging him lots. He is so patient and nice to me. I hope he knows how much I love him.
In addition to my brother, I also love playing on the computer, the Wii, being tickled, and, of course, my favorite place on Earth is Disneyland! Two of the first words I could spell were BIG and MOM. I hope mom knows that is because I love her big.
Mommy and daddy are trying very hard to bring me back to them. I've received lots of therapy from speech therapy to behavioral therapy. I am on a special diet (super healthy). I am also a patient of homeopathy and craniosacral therapy. I am at a great school. I love going and seeing friends every day, and my teacher is VERY nice! My entire program, school and therapeutic services, including the therapy I receive at home is like working a full-time job.And, as if DAN (Defeat Autism Now) doctors, homepaths, therapists, and aides weren't enough, mom and dad are arranging for me to have stem cell replacement therapy. Mom has talked to several parents who have taken their children for stem cell replacement and seen much success, as well as the doctors who perform this procedure.
It is here where I would like to ask for your support. The stem cell replacement costs a lot of money (I heard mom and dad talking one night). As there are a series of four trips we will have to take to Costa Rica/Panama in order to complete the procedures, there are a lot of fees involved. The place we are going (Stem Cell Medicine Institute) is about $15,500 EACH visit. In addition, each plane ticket is about $400 per person, and the week long stay at a hotel is about $750 each time. Mom and dad will also be purchasing a hyperbaric oxygen chamber (to assist in the stem cell replacement), which will be about $17,000. Soooo, this is about $90,000. I have NO idea how much this is, but I bet my family, friends, and other relatives could get into Disneyland for a few generations! If you are interested in donating, please visit my Wishing Well section at the top right and click on my page. It is a tax deductible donation.
Thank you for taking the time to read about me, my family, and the hope you are sending!
And, mom and dad - I can see your love, I can feel your love, and I share your love. Thank you for everything you do for me...I know, I really do know.
Sunday, November 8, 2009
The Success of Adult Stem Cells is not new!
Earlier this year, CBS news interviewed a young man who had developed MS (multiple-sclerosis) during high school. The Northwestern University of Chicago was conducting a study, and this man met the requirements. The use of HIS OWN stem cells was part of the study. Click on the link for yourself to read and hear in his own words, how he is recovered and the MS "disappeared!"
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Thoughts from Mommy
There are so many things everyday that I wish I knew about Riley that he is unable to tell me. I want to know how his day was at school….did he do anything that was really fun…how is he feeling…is there something that he would like to do together today? It’s nothing big or fancy that I wish I knew it’s just the little everyday things that I took for granted when Conner was this age. I just want to know what he is thinking and feeling…that’s all.
More than anything in this world, I wish I could hear him have a conversation with Conner and tell Conner that he loves him and ask Conner to sleep with him or play with him. I would cherish hearing them argue….I can’t wait for the day that they can talk with each other.
I hope that Riley knows how much I love him. I tell him about 100 times each day. I also want him to know how proud I am of him for working so hard everyday to make progress. Since the age of 21 months, he has had so many demands placed on him, things that take him out of his comfort zone. He has handled this with such grace and calmness and accepts the demands. He is amazing.
My favorite things to do with him are bake and play on the computer and watch his favorite movies because I see what joy that brings him and I love to see him just get to be a little boy for a little while…not in therapy…just doing what he loves.
If I could ask Riley one question and have him answer me, I would say, “What do you want to do today? If you could pick your best day with Mommy, what would you want to do?” I would love to hear him answer and then get to do that together. So the message is to ME AND EVERYONE ELSE is to savor every moment with your children and appreciate the little things because they are all miracles!
I love you Riley - Mommy
More than anything in this world, I wish I could hear him have a conversation with Conner and tell Conner that he loves him and ask Conner to sleep with him or play with him. I would cherish hearing them argue….I can’t wait for the day that they can talk with each other.
I hope that Riley knows how much I love him. I tell him about 100 times each day. I also want him to know how proud I am of him for working so hard everyday to make progress. Since the age of 21 months, he has had so many demands placed on him, things that take him out of his comfort zone. He has handled this with such grace and calmness and accepts the demands. He is amazing.
My favorite things to do with him are bake and play on the computer and watch his favorite movies because I see what joy that brings him and I love to see him just get to be a little boy for a little while…not in therapy…just doing what he loves.
If I could ask Riley one question and have him answer me, I would say, “What do you want to do today? If you could pick your best day with Mommy, what would you want to do?” I would love to hear him answer and then get to do that together. So the message is to ME AND EVERYONE ELSE is to savor every moment with your children and appreciate the little things because they are all miracles!
I love you Riley - Mommy
I love my mommy
Thoughts from Daddy
If someone asked me what I wish I knew about my Riley, I would have to say that I wish I knew what was going through his mind sometimes. I wish I knew that he understands that I love him very much. I would give anything to hear him say, "I love you daddy."
I hope that he knows how much I enjoy it when he sits down in our big chair and cuddles up to me and watches his favorite shows on TV. I hope he knows that I cherish my time with him and will always be there for him. I really enjoy watching him having a good time.
I look forward to the day when he can tell me what he wants to be when he grows up!
I love you son - Daddy
I hope that he knows how much I enjoy it when he sits down in our big chair and cuddles up to me and watches his favorite shows on TV. I hope he knows that I cherish my time with him and will always be there for him. I really enjoy watching him having a good time.
I look forward to the day when he can tell me what he wants to be when he grows up!
I love you son - Daddy
I got this dad...you just sit back and watch!
Thoughts from Granny
First let me express how special Riley is. He is a sweet, loving, happy, content, intelligent, little boy. Riley’s only downfall is that he cannot use his words. Even speechless, he has taught me so many things that should not be taken for granted. I just wish Riley could tell us what he was thinking and I knew what was going on his mind. I sometimes wonder how much he has stored up in his mind and once he does speak how much he will have to tell us. I can’t wait for that to happen. Though Riley cannot speak, he has many ways of expressing himself. He will point to what he wants, take your hand and pull you where he wants to go or show you what he wants. He also has a picture book that he can show you what he needs or wants. Sometimes he just takes it upon himself to get what he wants even though he knows he has had his limit (especially cookies!).
I would give up anything to hear to hear Riley say Granny. All kidding aside any words would be wonderful. You will hear me crying and screaming when that does happen and I know that it will.
I hope Riley knows how very much I love him and how special he is to me. Anytime I can spend with Riley is special. The memories we have made together are dear to my heart. I love to watch his favorite movie with him (he gets so excited), sing songs with him, read books (he love’s to turn the pages), and just playing together. I will cherish my time with Riley for as long as I live.
Sometimes when it’s just he and I, I ask Riley do you know how much Granny loves you? I spread my arms and tell him BIG, BIG, BIG like the whole wide world and he tries to copy me…I would love it he could say back to me. “I love you too Granny BIG BIG BIG like the whole wide world." This little boy has my heart forever!
Love, Granny
I would give up anything to hear to hear Riley say Granny. All kidding aside any words would be wonderful. You will hear me crying and screaming when that does happen and I know that it will.
I hope Riley knows how very much I love him and how special he is to me. Anytime I can spend with Riley is special. The memories we have made together are dear to my heart. I love to watch his favorite movie with him (he gets so excited), sing songs with him, read books (he love’s to turn the pages), and just playing together. I will cherish my time with Riley for as long as I live.
Sometimes when it’s just he and I, I ask Riley do you know how much Granny loves you? I spread my arms and tell him BIG, BIG, BIG like the whole wide world and he tries to copy me…I would love it he could say back to me. “I love you too Granny BIG BIG BIG like the whole wide world." This little boy has my heart forever!
Love, Granny
Thoughts from Pop
I would love to hear Riley say "Hi Pop", just like his brother Conner. Then he could tell me how his day has been, and what he is excited about .... I hope for the best Riley, and I love you.
Thoughts from Grandma and Grandpa in Turkey
Dear Riley,
We couldn't meet with you yet but we can feel you very strong in our heart. We pray for you every day and we look forward to hear any word from you even though we can't understand english :)
We love you,
Nadide and Umit DERELİOGLU (Grandmother and Grandfather from Turkey)
We couldn't meet with you yet but we can feel you very strong in our heart. We pray for you every day and we look forward to hear any word from you even though we can't understand english :)
We love you,
Nadide and Umit DERELİOGLU (Grandmother and Grandfather from Turkey)
Thoughts from Aunt Monica
I feel truly blessed to be Riley’s aunt. He is such a loving, smart, and happy little boy. Spending time with him is always an adventure. We always have so much fun! Some of my favorite activities with Riley include reading books, singing songs, bowling, swimming, riding the carousel and train, and riding up and down the escalator wherever we can find one! Riley teaches me to appreciate the important things in life, such as family, love, hope, and faith and that nothing should ever be taken for granted. I know that Riley loves his family and friends so much and I would love to hear him say “I love you, Mommy”, “I love you, Daddy”, “I love you, brother” (and of course, the rest of us too). I know that Riley would also love to say, “I want more cookies!!” Those little wheels in his head are always spinning and I just wish that I could know what he is thinking. (I know that it would be good – probably hilarious and most definitely intelligent!!) If I could ask Riley just one question, it would be “What do you want to be when you grow up?” because I know that he will be able to do anything that he wants!!!!
“What a Wonderful World” by Louis Armstrong is definitely the song that I feel relates to Riley. I have always loved this song and while I was a schoolteacher I found a beautiful book based on this song. After I stopped teaching, it is one of the books that I passed along to Conner and Riley. They both truly make this world a more wonderful place!!
I love you – Aunt Monica
“What a Wonderful World” by Louis Armstrong is definitely the song that I feel relates to Riley. I have always loved this song and while I was a schoolteacher I found a beautiful book based on this song. After I stopped teaching, it is one of the books that I passed along to Conner and Riley. They both truly make this world a more wonderful place!!
I love you – Aunt Monica
Thoughts from Aunt Ozlem
Hello Riley,
We just met couple months ago. We could't have too much time but every single minute with you was very special for me. You are so sweet and smart. I wish you all my best for your trip to Costa Rica and can't wait to see you and hear anything from you.
I love you,
Aunt OZLEM (October 2009)
We just met couple months ago. We could't have too much time but every single minute with you was very special for me. You are so sweet and smart. I wish you all my best for your trip to Costa Rica and can't wait to see you and hear anything from you.
I love you,
Aunt OZLEM (October 2009)
Thoughts from Aunt Karen
Dear Sweet Riley-
I feel like I know you so well without you speaking a word, but there are still SO many things I would love to hear you say. I wish I knew exactly what was going on in your little head, and how you are feeling on the inside. Do you get frustrated that you can't express your feelings in words?
What I would give to hear you say words of any sort. But in a perfect world, I just want to hear you say "I Love You" or "can I come sleep over tonight?"
I just hope you know that you are an amazing little boy...and quite cute too! Riley, you have a smile that can keep me going for hours. I cherish my time with you so much. Even though you don’t speak, you have a language of your own. And, I must say, for a child that can't speak, you are quite persistent. My personal favorite is when you grab my hand and take me to your special section of the pantry and stick my hand on the cookie box, over and over again in hopes that you will get cookies. I have to confess that if Mommy wasn't there telling you (and me) no, you would probably get all the cookies you want!!!
I know you understand a lot because you are a very bright boy. But the one thing I hope you know most of all is that you have the most amazing Mommy and Daddy (and big brother) a boy could ever ask for. They love you so much and are going to do whatever it takes to give you an amazing life. I know you feel that in your heart!
I Love you Precious-
Aunt Karen (Nanny)
I feel like I know you so well without you speaking a word, but there are still SO many things I would love to hear you say. I wish I knew exactly what was going on in your little head, and how you are feeling on the inside. Do you get frustrated that you can't express your feelings in words?
What I would give to hear you say words of any sort. But in a perfect world, I just want to hear you say "I Love You" or "can I come sleep over tonight?"
I just hope you know that you are an amazing little boy...and quite cute too! Riley, you have a smile that can keep me going for hours. I cherish my time with you so much. Even though you don’t speak, you have a language of your own. And, I must say, for a child that can't speak, you are quite persistent. My personal favorite is when you grab my hand and take me to your special section of the pantry and stick my hand on the cookie box, over and over again in hopes that you will get cookies. I have to confess that if Mommy wasn't there telling you (and me) no, you would probably get all the cookies you want!!!
I know you understand a lot because you are a very bright boy. But the one thing I hope you know most of all is that you have the most amazing Mommy and Daddy (and big brother) a boy could ever ask for. They love you so much and are going to do whatever it takes to give you an amazing life. I know you feel that in your heart!
I Love you Precious-
Aunt Karen (Nanny)
Hopeful Wishes from Friends
My wish for Riley - from "Aunt" Kerry
Riley and my son, Christopher, were born on the same day, 9 hours apart. Suzanne and I talked daily comparing feeding schedules, sleeping schedules, as well as our lack of sleep. J We shared first smiles, laughs, giggles, steps and other milestones together. I’ve always felt that I have known Riley well, even with the 1,500 miles that are between us.
As we continue to watch our children grow together, my hopes and dreams for Riley are that he becomes a strong, vibrant, independent, young man. One whose spirit isn't easily broken. One whose morals and values are as solid as his parents'. My wish is that the constant determination of Zack and Suzanne to facilitate Riley’s recovery pays off with huge results.
I hope that Riley knows how much happiness he has brought to his family. I hope this precious, little boy will soon be able to tell them in his own words how much he loves them!
Love,
Kerry (October 2009)
My wish for Riley - from "Aunt" Shaunda
Dear Riley,
Your Mommy and I have been friends since we were 14-years old. That’s a really long time! We lived together when she met your Daddy and they fell in love and then got married. Your whole family is very special to me.
I work in schools with children who have special needs, so I’ve had the opportunity to know many children with autism and their parents. And, I can tell you that I have never met another Mommy and Daddy like yours! Sometimes people have a hard time accepting the word autism. But, from the very moment your Mommy heard the word autism, she began to read, research, study, and talk to anyone and everyone to make certain that you received nothing but the best treatment. They have never accepted “No,” “Can’t,” or “ Won’t” as an option for you. They live with an unwavering faith that you can and you will achieve all that God has planned for you. Your trip to Costa Rica for stem-cell therapy reflects their commitment to pursuing all options to support your recovery.
Your family loves you more than all of the grains of sand on the beach, more than all of the stars in the sky. My wish for you is that one day soon you will be able to look at them and speak the words, “I love you too!”
With all my love,
Aunt Shaunda (October 2009)
My wish for Riley - from Leanne
Working with Riley over the past year has been such a pleasure. Riley’s smile and laughter always brighten my day. Riley is such a smart boy, with very strong receptive skills. In the last year alone, he has grown and learned so much. He’s learned animals, numbers, ABC’s, began school, started playing more with friends, and he is becoming more independent (just to name a few). It’s exciting also to see Riley trying so hard to communicate, in so many ways, like using sounds, signs, pulling you (gently) and pointing to what he wants, or even using his PECS pictures. I often wonder though, what’s really going through his head. If Riley could speak, I would love for him to tell me his preferences during our sessions and be able express how he is feeling. Riley’s adventure to Costa Rica is very exciting! I am eager to see how he takes to his new therapy. Results from this cutting edge therapy will not only change the lives of he and his family but also potentially may change the lives of other children with Autism in the future.
~Leanne (October 2009)
My wish for Riley - from The Sumida Family
Precious Riley....You will be in our thoughts and prayers as you embark on this journey to Costa Rica. Your beautiful eyes are filled with so much depth and wonder, I know you have so much to say and will celebrate with your Mom and Dad when that day comes. Your family loves you beyond measure and seeing your recovery is their greatest desire.
We have had the honor of getting to know you and see you grow and turn into the incredible little boy you are. We wish you a safe and abundantly fruitful journey.
All of our love sweet boy,
The Sumida Family (October 2009)
Message of hope - from The Wehn's
Zack and Suzanne,
Through all the years we've known you both, we can't remember anything that the two of you haven't been able to accomplish together. Although the future looks uncertain, we would like to encourage both of you to continue to be strong, persevere and most of all keep the faith. We will continue to keep you, Conner and especially Riley in our prayers.
Love,
Scott and Ami
Proverbs 3:4-5 Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will direct your paths.
Message of hope - from The Braddy Family
Zack & Suzanne,
Riley is such a blessing to everyone who knows him. Even so, he has been greatly blessed to have you as his parents. Just as God provides for us what we need, He has given Riley the exact parents HE needs to see him through this journey. The love and dedication you have for your children is evident in your actions. We hope and pray the best for Riley. God has created him and has immense plans for his life! We love you all and will keep you in our prayers every step of the way.
"I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:14
Pam, Brett, Hannah & Hunter
Message of hope and love - from Jimmy and Donna
Dear Zack & Suzanne,
May God be with you and grant you courage and strength as you pursue this "Stem-cell" therapy in your search for healing and treatment for your beloved son, Riley.
Dear Riley,
Your Mom, Dad, Conner and your entire family mean so much to us. All our hopes and prayers go with you as you travel to Costa Rica to begin your treatments. May it be the start of a new and exciting time, when you are finally able to express your feelings, hopes, desires & dreams! We want nothing but the very best for you.
With much love & many prayers,
Jimmy & Donna (October 2009)
Riley and my son, Christopher, were born on the same day, 9 hours apart. Suzanne and I talked daily comparing feeding schedules, sleeping schedules, as well as our lack of sleep. J We shared first smiles, laughs, giggles, steps and other milestones together. I’ve always felt that I have known Riley well, even with the 1,500 miles that are between us.
As we continue to watch our children grow together, my hopes and dreams for Riley are that he becomes a strong, vibrant, independent, young man. One whose spirit isn't easily broken. One whose morals and values are as solid as his parents'. My wish is that the constant determination of Zack and Suzanne to facilitate Riley’s recovery pays off with huge results.
I hope that Riley knows how much happiness he has brought to his family. I hope this precious, little boy will soon be able to tell them in his own words how much he loves them!
Love,
Kerry (October 2009)
My wish for Riley - from "Aunt" Shaunda
Dear Riley,
Your Mommy and I have been friends since we were 14-years old. That’s a really long time! We lived together when she met your Daddy and they fell in love and then got married. Your whole family is very special to me.
I work in schools with children who have special needs, so I’ve had the opportunity to know many children with autism and their parents. And, I can tell you that I have never met another Mommy and Daddy like yours! Sometimes people have a hard time accepting the word autism. But, from the very moment your Mommy heard the word autism, she began to read, research, study, and talk to anyone and everyone to make certain that you received nothing but the best treatment. They have never accepted “No,” “Can’t,” or “ Won’t” as an option for you. They live with an unwavering faith that you can and you will achieve all that God has planned for you. Your trip to Costa Rica for stem-cell therapy reflects their commitment to pursuing all options to support your recovery.
Your family loves you more than all of the grains of sand on the beach, more than all of the stars in the sky. My wish for you is that one day soon you will be able to look at them and speak the words, “I love you too!”
With all my love,
Aunt Shaunda (October 2009)
My wish for Riley - from Leanne
Working with Riley over the past year has been such a pleasure. Riley’s smile and laughter always brighten my day. Riley is such a smart boy, with very strong receptive skills. In the last year alone, he has grown and learned so much. He’s learned animals, numbers, ABC’s, began school, started playing more with friends, and he is becoming more independent (just to name a few). It’s exciting also to see Riley trying so hard to communicate, in so many ways, like using sounds, signs, pulling you (gently) and pointing to what he wants, or even using his PECS pictures. I often wonder though, what’s really going through his head. If Riley could speak, I would love for him to tell me his preferences during our sessions and be able express how he is feeling. Riley’s adventure to Costa Rica is very exciting! I am eager to see how he takes to his new therapy. Results from this cutting edge therapy will not only change the lives of he and his family but also potentially may change the lives of other children with Autism in the future.
~Leanne (October 2009)
My wish for Riley - from The Sumida Family
Precious Riley....You will be in our thoughts and prayers as you embark on this journey to Costa Rica. Your beautiful eyes are filled with so much depth and wonder, I know you have so much to say and will celebrate with your Mom and Dad when that day comes. Your family loves you beyond measure and seeing your recovery is their greatest desire.
We have had the honor of getting to know you and see you grow and turn into the incredible little boy you are. We wish you a safe and abundantly fruitful journey.
All of our love sweet boy,
The Sumida Family (October 2009)
Message of hope - from The Wehn's
Zack and Suzanne,
Through all the years we've known you both, we can't remember anything that the two of you haven't been able to accomplish together. Although the future looks uncertain, we would like to encourage both of you to continue to be strong, persevere and most of all keep the faith. We will continue to keep you, Conner and especially Riley in our prayers.
Love,
Scott and Ami
Proverbs 3:4-5 Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will direct your paths.
Message of hope - from The Braddy Family
Zack & Suzanne,
Riley is such a blessing to everyone who knows him. Even so, he has been greatly blessed to have you as his parents. Just as God provides for us what we need, He has given Riley the exact parents HE needs to see him through this journey. The love and dedication you have for your children is evident in your actions. We hope and pray the best for Riley. God has created him and has immense plans for his life! We love you all and will keep you in our prayers every step of the way.
"I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:14
Pam, Brett, Hannah & Hunter
Message of hope and love - from Jimmy and Donna
Dear Zack & Suzanne,
May God be with you and grant you courage and strength as you pursue this "Stem-cell" therapy in your search for healing and treatment for your beloved son, Riley.
Dear Riley,
Your Mom, Dad, Conner and your entire family mean so much to us. All our hopes and prayers go with you as you travel to Costa Rica to begin your treatments. May it be the start of a new and exciting time, when you are finally able to express your feelings, hopes, desires & dreams! We want nothing but the very best for you.
With much love & many prayers,
Jimmy & Donna (October 2009)






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